My Blood Clot Story Part 2

So life had been ticking along and i was just coming to terms with my diagnosis of Fibromyalgia, and i had been in and out of A&E with pain in my chest and legs and as always i was made to believe its in my head and could just be pain from the damage that my last clots had caused. Well what do you know once again i went in to A&E with severe pain in my right lower chest and they ran tests and told me to come in the next day after administrating Tinzaparin injections again so the following day i went in and had a VQ scan as a CT scan in November 2014 had not picked up any pulmonary embolisms. Again i was administered with a Tinzaparin injection and sent home to come in the next day. When i was there the next day i was told by a consultant that i had lots of small clots on both of my lungs and they could not tell me how many as there were too many to count and that i had a choice of Warfarin or Xarelto (rivaroxaban) and obviously i was going to choose  rivaroxaban, i mean who would want the hassle of weekly tests and watching what you eat. So i was sent home after literally speaking with the consultant for 3 minutes.

A month later i was back again with severe pain in my chest, right leg and arm and had a USS of both legs and right arm but was not given any test for my chest as according to them i had already been exposed to too much radiation so the tests were clear however i was taken of the rivaroxaban and put on Tinzaparin injections until i was due to see the haematologist again. In the mean time i had a look at my discharge summary which showed i also had pulmonary hypertension and my VQ scan and suggested thromboembolic disease.

Through all of this crap i have had the support of the man of my dreamzzz my darling husband who has been with me every step of the way, held my hand and told me i will be fine and will get better when i lost all hope. He wiped my tears while concealing his and held me tight when i felt the earth beneath my feet give way. I love him very much and wish for him all the health and happiness with me or without.....

It had been over 6 months being on tinzaparin injecting myself daily to start with and then twice a day morning and evening and i had another VQ scan which showed there was no change since my last VQ and that the anticoagulants made no difference to all the clots. I was seen by my haematologist who suggested that as there was no evidence that the rivaroxaban Had not worked previously and that i should give it another try as the Tinzaparin injections causes osteoarthritis long term. I agreed to this and i was also told that i would be referred to the Papworth hospital in Camberidge for the management of my Pulmonary Hypertension.

Since i have recieved an appointment within the next 2 weeks and hopefully there should be something that can be done. I am feeling worse with each day that passes and little tasks seem like a huge mountain to conquer. Maybe im losing hope or i have just accepted fait the way it is, my quality of life has been deeply affected with this horrible illness and sometimes i feel like i can not go on and just wish it would end right now but my family keeps me going, my reason to live.........